Orphan diseases collectively affect as many as 25 million people in the United States. An orphan disease is also known as a rare disease and the terms are often used interchangeably Myositis, including its subtypes of Polymyositis, Dermatomyositis, and Inclusion Body Myositis, are orphan diseases. In the United States, a rare disease affects 200,000 patients or fewer. Simply stated, an “orphan disease,” sometimes called a “rare disease,” describes one of more of 7,000 diseases affecting relatively small numbers of patients. To help you understand better, we have provided some information and a little bit of background. Are we the Orphans of the Healthcare System?Īs a patient living with a rare disease you may come across words such as “orphan disease” and “orphan drugs,” but not really understand what they mean or how they differ from common diseases and drugs.
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